6 years ago I was diagnosed with a rare lung disease called Lymphangioleiomyomatosis (LAM); you can call me Mary. After much panic, disbelief and deep grief I find myself at a place of relative calm with my newfound reality. As a LAM patient I decided to create a place where I can share my story, personal observations about this crazy journey as well as medical resources, new experiences and other things I think might be worth sharing while coping with LAM.

That being said, this is my first blog and right now I’m working full time. I welcome feedback and conversation but I can’t say for certain how much time I will have after work and self-care to get back to you.

I do hope you will find my story interesting and by sharing my journey here I truly have faith that in some small way that I can contribute to finding some answers about LAM <3.