5 years ago I was diagnosed with a rare lung disease called Lymphangioleiomyomatosis (LAM); you can call me Mary. After much panic, disbelief and deep grief I find myself at a place of relative calm with my newfound reality. As a LAM patient I decided to create a place where I can share my story, personal observations about this crazy journey as well as medical resources, new experiences and other things I think might be worth sharing while coping with LAM.

That being said, this is my first blog and right now I am going try to aim for two entries per month. Cuurently I work full time and although I welcome feedback and conversation I am not sure how much time I will have after work and self-care to devote to the blogosphere.

Let’s see how it goes ❤