Hello and Welcome!

This is my blog about my journey of living with a rare disease called lymphangioleiomyomatosis (LAM).

My hope is that by sharing my experiences with you all here, I can contribute to a greater understanding of what it’s like to live with lung disease and cope with a rare disease diagnosis.

This is my first blog and right now I’m working full time. I welcome feedback and conversation here but I can’t say for certain how much energy I will have after work and self-care to participate – but I will try my best to reply to you!

Thanks for stopping by. ❤ Mary