Mary Had a Little LAM

Living with and searching for the answers to Lymphangioleiomyomatosis

Moe

February 24, 2018.Reading time 13 minutes.

In a nutshell I learned from the on-call GP who saw me that day that the tumour wasn’t cancerous. It was instead a benign tumour composed of fat and muscle that had a blood supply of its own. Relief flooded my body. “Angiomyolipoma – causes, symptoms, diagnosis, treatment, pathology” by Osmosis is licensed under a […]

6 years ago I was diagnosed with a rare lung disease called Lymphangioleiomyomatosis (LAM); you can call me Mary. After much panic, disbelief and deep grief I find myself at a place of relative calm with my newfound reality.

As a LAM patient I decided to create a place where I can share my story, personal observations about this crazy journey as well as medical resources, new experiences and other things I think might be worth sharing while coping with LAM.

That being said, this is my first blog and right now I’m working full time. I welcome feedback and conversation but I can’t say for certain how much time I will have after work and self-care to get back to you.

I do hope you will find my story interesting and by sharing my journey here I truly have faith that in some small way that I can contribute to finding some answers about LAM.

Thank you for stopping by <3.