Category: Living Well with LAM
Rare Disease Day 2022
On February 28, why not take a moment to explore rarediseaseday.org?
Spoons and Tightropes
Are you familiar with Christine Miserandino’s Spoon Theory? While Miserandno’s Spoon Theory resonated with me, Clare Edgerton’s Tightrope Theory more clearly represents what my life has been like for the last handful of years…some days are better that others, some hours are better than others. Well dear reader, 2019 was pretty much a tightrope walking, … More Spoons and Tightropes
Solistalgia
By August of each year the city and the surrounding countryside where I live becomes ‘scary’ dry. Summer months often mean no rain for weeks on end; there are often water restrictions, yellow dead grass covers front lawns and seagull guano paints the downtown sidewalks white. If you were to go for a summer walk … More Solistalgia